Friday, January 10, 2014

My final farewell to my grandmother and friend..........Nursing Home Drama-The Finale

03-30-2013 at 12:22 PM 
March 18th, 9:53 a.m. The dreaded phone call came. I answered the phone and heard my mother crying hysterically, “Bubbe died!” My initial reaction was, “oh my God!” It’s a fact that even though one is prepared for a loved one to die one is never prepared for the actual event. It was only the day before that I had a visit with her.

March 17th, 2:30 p.m. It was a routine visit but different from the day before. Today Bubbe seemed to be at peace. She was enjoying the fruit sorbet smoothie I had brought her. She sipped it out of her straw so fast that I had to remind her to sip slowly or she will get a brain freeze. Her response was a familiar, “yes Ma’am”, that gave me total satisfaction that she still had her sense of humor. There was no sense of agitation except for when she appeared to have used every ounce of energy to say, “Shuffle off to Buffalo.” It seemed as though she was in pain trying to get the entire phrase out of her mouth. I didn’t know the significance of this phrase but for some reason she said it often and seemed to have a purpose because of all the effort put into saying it. I sat with her for a few hours watching the food network “Chopped”. I rubbed her arm and held her hand and at times she would squeeze my hand. I acknowledged her awareness of my presence. Often she would shout out, “I want a drink!” Even with the straw in her mouth she would repeat herself, “I want a drink?” I was happy to be there to see that her needs were met. Shortly before I left her aid came into her room to clean her up and change her comforter that was dirty from her daily bed bound meals. She also mentioned to me that my grandmother was having what she suspected were Cheyne- Stokes respiration which is defined as according to Wikipedia as ‘an abnormal pattern of breathing characterized by progressively deeper and sometimes faster breathing, followed by a gradual decrease that results in a temporary stop in breathing.’ This cycle repeats itself and is known to be an indicator that death is near by days. She expressed her concern and monitored my grandmother overnight but she did fine and woke up the next morning in the same sleepy state as the days before. With this new information I informed my mother. I personally did not witness this during my visit on this day.

After my grandmother was cleaned and comfortable with her clean bedspread I noticed she was sleeping and I didn’t want to disturb her so I quietly said, “Bye Bubbe I love you.” And, I left.

I was told the next morning she woke up and had breakfast, fell asleep, and died.

After receiving the phone call from my mother I panicked. It was spring break and my kids were home from school. I felt the need to get to the nursing home right away so I could say goodbye for the last time. I scrambled to find a babysitter. I called my husband at work who said he would be home as soon as he could. In the meantime my niece showed up at my doorstep on her day off from school and early in the morning so that I could be on my way. Thank you Becca!

I joined my mother, aunt and uncle and the hospice staff in my grandmothers’ room. She lay on her bed as if she were asleep. I kissed her on the forehead and said a few words to her that I know she could hear one way or another.

The feelings we had were bittersweet. We were satisfied that Bubbe was no longer in pain whether mental or physical and she was at peace. But, at the same time we felt the loss of someone that had been a part of our daily lives.

The funeral was two days later. I couldn’t find the words then but since I found I was able to put my feelings best in a poem as I eulogize my grandmother and friend.


“I want to go home”, “I want my mother”
Were things you often said,
That only meant one thing to me
It meant you would have to be dead.

I wasn’t sure if you knew
That you were going to die,
I was afraid to tell you,
Afraid of your reply.

The social worker said “She knows”
“She says it in her own way”,
“I suggest you tell her it’s ok
And take it day by day”.

I prayed for you to be at peace
I prayed for you to go,
I will quote Shakespears’ King Richard II
“So two, together weeping, make one woe”.

It was hard to say goodbye to you
As you left your earthly life,
But I want you to know it’s clear to me
Your love for me is rife.

We buried you the other day
And laid you down to rest
Beside the man you married
To whom your love you did confess.
(He really was the best)

After you were gone for good
I shed a lot of tears
I miss you more than anything
You were my best friend for years.

I feel a void of having you
A part of my daily routine
I know it will take time to grieve
On my family I will lean.

It’s funny how this story ends
Because of what I have learned
You always had a way with words
There came an awkward turn.

I remembered the words of the social worker
“She says it in her own way”
I never knew what you meant when you said “Shuffle off to Buffalo”
I thought it meant to go astray.

I got a funny feeling
You saw it clearly in your mind’s eye
In hindsight it’s ironic
This was your way of saying you were ready to die. (“Shuffle off to Buffalo” = ‘to die’)

Your being where you want to be
With your husband, mom and dad,
Gives me a sense of peace
You are no longer sad.

Over the course of the last few years of my dairying on the series “Nursing Home Drama” there have been over 13,000 viewers. I want to thank you for your support and hope that this drama has helped someone who may have or are experiencing some of the same. I hope you continue to read my blog “The Diary of a Private Investigator” as I continue to diary my adventures. Please share this blog with your friends and LIKE my facebook page at www.facebook.com/diaryofapi.

Bubie RIP 1919-2013..................... ...........More Nursing Home Drama

03-19-2013 at 09:31 PM 
Bubie died on March 18th at 9:50 a.m. Since my first blog posting titled "Nursing Home Drama" on October 6, 2011 I have had the support of thousands of readers who in many ways expressed their interest in my grandmothers' well being. I appreciate the support and hope you continue to read my blog. My final posting on "Nursing Home Drama" will be coming soon as I reflect on the final days with my Bubie.

A Cute Little Story.................... ..More Nursing Home Drama

03-12-2013 at 06:46 PM 
The other day during one of my visits I approached my grandmother who was lying in her bed and bent down to kiss her and said "hello". She responded by saying "peekaboo". I laughed.

I then sat down to eat my lunch and heard her say, "don't eat so much. That's enough." This was deja vu. This is something she used to say to me when I was an overweight child. This continued into my late teens and I used to get so mad at her for saying it to me. It was hurtful and insulting. One day she is stuffing food down my throat, not literally, by feeding me sweets and the next she is telling me I eat too much. I didn't know what to make of it except that she had the Jewish Mother Syndrome not to say that there is anything wrong with Jewish mothers or Italian and Greek for that matter. They're all the same. How could I get mad at her now? It was nice to have a taste of the Bubie I once knew. I get a little taste of it every now and then.

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Where Does All The Time Go?...................... More Nursing Home Drama

03-08-2013 at 12:20 PM 
It's been a few weeks since my last entry into my diary. I have been very busy with life and lost track of time. Among other things going on I have managed to get up to the nursing home several times in the last month almost daily except for this last week. There is not enough time in the day.

Now that she has been on permanent bed rest my grandmother seems to be more rested than she was when the staff moved her around to put her in her chair to sit at a dining room table to only put her head down to sleep. Her eyes are closed 98% of the time and she sleeps 90% of the time. The only time she is awake is for meal times and bath time. When I visit her and bend down to kiss her she always manages to give me a few kisses and tells me "your an angel" or "your a sweetheart". That is about all she says to me. Sometimes I play music for her or I will talk to her about my day. It's almost always a one sided conversation.

The 2% of the time that her eyes are open she is mostly looking up as if she is looking for something or sees something that we cannot see and her eyes do not open all of the way but just enough to see. And, when she opens her eyes while looking in my direction I can tell she isn't looking at me because although her eyelid may be open a quarter of the way she is not focused on one thing and all I see is weakness. We believe it is only a matter of days until my grandmother is with my grandmother and her parents.

On one of my latest visits I fed her some soup and noticed every time I incorporate vegetables in the soup she spit it out. I reported her intake to her nurse and her nurse walked into her room, took a spoonful of soup with a lot of vegetables and fed it to her. I didn't stick around to see what happened after that but as I was leaving I heard my grandmother have a short conversation with her nurse and apparently after she swallowed the soup with vegies. I noticed the nurse had asked her a lot of questions and my grandmother answered.

I will ask her questions on my next visit.

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Bubbe Update................... .............. More Nursing Home Drama

02-26-2013 at 10:21 PM 
The last few visits to the nursing home have been much of the same as it has been in the last few weeks. My grandmother is now on complete "bed rest" which means that she will remain in her bed for the rest of her life. We elected to put her on bed rest based on the fact that the majority of the time her eyes are closed and she feels disturbed when she is touched and moved from her bed to her chair. She barely eats and wants to sleep even while in her chair. Our goal is to keep her as comfortable as possible.

In the meantime there is no lack of "entertainment" in the halls of the 100 wing of the nursing home. Her move from the "psych ward" by my definition, the high risk wing by their definition was somewhat a lateral move. The people in the psych ward including the Cabbage Patch Lady, Santa, and the lady with the baby certainly acted as if they had earned their status in this wing and the people in the 100 wing although different in demeanor have similarly earned status that do not require them to be locked up. For example in the 100 wing there are two people that on separate occasions wheel themselves up and down the hallways and sometimes into my grandmothers' room. The old bald man has a very raspy and loud voice and when he raises his voice he comes across as very mean especially when he tells people what to do. He sits with the same lady at meal times and the same argument ensues daily. It's always about the center piece on their table. They act like an old married couple. The old lady who wheels up and down the hallways often gets mad at the staff and blurts out, "what the fuck! what the fuck! what the fuck!" and "That's bullshit! That's bullshit! That's bullshit!" all as she wheels herself down the hallway nobody paying attention to her, well, except for me obviously since I have quoted her here. :-)

Another lady who is apparently unable to speak communicates solely by making this sound, "bah, bah, bah bah, bah" loudly. Another lady lets out blood curdling screams as if she is being tortured with high voltage electric shocks although I am not sure you could actually scream under those circumstances. A better example may be that of giving birth to a ten pound baby without any sedation or epidural. When I hear her screams I cringe.

I don't know how they do it but I credit the staff that work in this environment day in and day out. As far as Bubbe is concerned we will continue to lover her and take care of her. Today when I went to see her I walked over to her bed, put my hand on her shoulder, bent down to kiss her and told her I was there. I asked her if she was alright and she cried out "no!" I asked her in a very tender tone, "what's the matter?" She replied in a weepy way, "I don't feel good." I assured her that I and my mother were there and we would take care of her. We are there everyday to comfort her and give her whatever she needs. We learned that more than half of the people on this wing do not receive any visitors.

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Bubbe update................... ..........More Nursing Home Drama

02-15-2013 at 12:13 PM 
First I would like to address the many requests I received from several readers who would like to know the names of the books I am reading or have read referencing my last blog posting on 2/5/13, titled "Bubbie Update". If you would like to contact me outside of this website please send me a private message on any of my facebook pages including www.facebook.com/emotionalescape.com OR www.facebook.com/diaryofapi. I enjoy hearing from my readers.

1. To Heaven And Back written by Mary C Neal, MD (A true story about a doctor who had a near death experience after almost drowning as a result of a kayaking accident)

2. Journey of Souls written by Michael Newton PH.D. (This hypnotherapist shares his case studies of life between lives. The life that you live from the time you die until your next life on earth begins)

These two books were amazing and if you read "To Heaven and Back" first the second book "Journey of Souls" explains a lot about why things happened the way they did in "To Heaven and Back".

Bubbe Update (notice the different spellings I use including Bubie and Bubbie. The correct spelling is actually Bubbe.)

I hate watching Bubbe suffer like this. Her half closed eyes, sunk in cheeks and lack of teeth make her look old but the red hair reminds me of the way she really looks when at her best. **sigh** Head down, eyes closes trying to get into a fetal position in her high back wheelchair is the sight I see when I first walk into the dining room where she sits at a table with a plate full of food in front of her. What's the point? She is not hungry and all she wants to do is sleep. Why even get her up in the first place. It would be considered neglect if they didn't. I guess leaving her in her wheelchair for indefinite amounts of time and not responding to her calling out for help isn't neglect among other things they fail to do that is just as important as feeding her. But, I digress.

Hospice suggested we start to let her go and tell her it's alright to go be with her mother and father. I have a hard time doing this because it means I am telling her it's o.k. to die. In my mind even though I want her to be at peace and if dying is the way to get there then I want her to die but I don't want to say it to her face. (I hate watching myself type this). "Bubbe, it's ok to go be with her mother and father. They are waiting for you," means I have to tell her she is dying. At these moments I wonder what is going through her mind. I wonder if she knows she is dying. I wonder if she is resisting it. When my mother tells her these things Bubbe doesn't respond but when she asks, "where is my mother? I want to be with my mother" and my mother says, "it's o.k. to go be with your mother" sometimes she will ask where her mother is and not just her location but she wants an address it seems. How can we be sure she acknowledges her fate and that her mind isn't playing tricks on her? Even when my own father was dying I couldn't tell him it was o.k. to go but instead told him that if he was in pain it was o.k. with me for him to go in order to stop the pain. He fought to stay alive until the very end and one of the last things I heard him say was that he wasn't in pain. He died of Pancreatic Cancer in 2004. I suspect that many people share my feelings about giving someone you care about verbal permission to check out and is recommended by hospice and nurses that care for terminal ill patients.

When hospice saw her yesterday they had not realized how much closer she is to death than they had guessed a few days before. They suspect that it is now more realistic to say it will be less than 2 weeks. Four weeks ago they said the same thing but without confidence. The family is anxious. It's like watching two cars moving at a slow pace heading for a collision. You know they will have impact but you don't know how bad the impact will be until after it happens. This properly describes the way I am feeling at this time.

I thank goodness for you, my diary, for allowing me a place to vent and log the events in the my life and the thoughts I have that I may not otherwise be able to share face to face with another living being.

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Bubbie Update................... ....More Nursing Home Drama

02-05-2013 at 07:00 PM 
For those that really know me they know I am a skeptic by nature and by trade. I don't believe everything I hear or read and often require evidence in order to consider the truth that I ultimately believe. It’s my general rule that even if a person doesn’t believe something someone tells them it is complimentary to keep our thoughts to our self but our action or lack of response can sometimes be misconstrue that as being naïve. If you follow what I am saying then please keep reading. You must feel the same way I do and feel the freedom to be yourself and not worry so much what others’ think and have every reason not to worry what they think because who you are is not fake but true and people love you because of that. Right? Right!

With that said I have always been intrigued with the supernatural and I am a believer of life after death. I am not sure yet what that life is but I believe there is something. I believe that “ghosts” as we commonly call them do exist as well as God. Something somewhere created the universe and if it was the big bang that created our universe then something created the power for the big bang to have occurred. So, I have been reading a lot of books for the last few months about life after death and the journey of souls and what happens to them after we “die”. My choices of books have been written by those that in my opinion are qualified to give such information to me. I don’t know how I choose them but I research the people that have written the books before I read them and my “intuition” tells me which ones to read. So far my choice of authors has coincidentally been doctors. After having read the books I have read so far I wonder if there is such a thing as coincidence. This leads me to ask the question, was I meant to read these books?

As I sat with my grandmother in the nursing home and read my latest book “To Heaven And Back” I witness her doing something that people in their right mind do not do and then witnessed something even more bizarre the next day. If you read my blogs then you know what I am talking about. Those that are first time readers should read my blog of 1/24/13 to catch up.

Since this occurrence her behavior has been up and down like a roller coaster. She has had conversations with people we cannot see. Her eyes are closed most of the time while she simulates stirring a spoon in a pot and serving her guests at her dining room table. She has announced the arrival of her mother and at the same time has a smile on her face and shows a sense of calmness. During this occurrence she was not consciously aware of our presence and only those that she could see with her eyes closed. She would not respond to us or the nursing staff who had to move her body from place to place during this 5 hour occurrence. It’s as if she wasn’t in her body at all. That is when my mother and I looked at each other and thought it was the end. She is getting closer to death and stepping into whatever life waits for her. The downside of the roller coaster was the next day when she was agitated and needed an anxiety pill to help calm her. The day after that she was back to having conversations with those we could not see but not as much as she did two days before.

Several days have passed since and now the roller coaster has taken us on a loop, upside down it seems. She is getting weaker by the day, her eyes remain closed the majority of the time, and she has started to say goodbye to us, in our minds, by telling us how much she loves and appreciates us. Also, until now she has forgotten who is in the room with her at any given time but now she seems to know when we are in the room even with her eyes closed. It’s as if someone is there whispering in her ear, “your daughter is here, she can help you get a drink of water” or “your granddaughter is sitting right next to you” which results with her telling me how much she loves me. She calls us by name and tells us what she wants.

I know you may think it sounds like wishful thinking on our part or you may even think of that word that I am not sure is real “coincidence”. My license plate doesn’t read WHAT IF for nothing! What if it IS real? What if everything we are seeing with our own eyes is divine intervention? How do I know it's not?

You wouldn’t believe me if I told you the content of the books I am reading and the amount of evidence or circumstantial evidence that has been documented for the research these Dr’s report about. I have one question for you. How could there be thousands of people scattered across the earth none of which know each other researched by several doctors including PhD’s and MD’s who report similarif not the same events that occurred to their subject's during their alleged near death experience or life after death occurrence one of which is a neurosurgeon who experienced his own NDE and not believe any of it to be true? I am trying to decide this for myself.

Before I step into my grandmothers’ room I wonder what I will see. I can’t deny how exciting it is to see her act as if she is conversing with her loved ones who have already passed and watch her prepare a meal for her family as she so often did in her prime. I entertained the thought that she has hallucinations and her brain is malfunctioning but I can’t help wonder if there is something else going on that I can’t see. Just because I want it to be true doesn’t mean I believe it is. If I choose to believe it is it will be because it is. (Got it?)

Yesterday Bubbie was agitated and wanted to go home, wanted her mother, and wanted to be left alone. Today, she slept most of the day getting up only for meals. Still, the majority of the time her eyes are closed and only after a short amount of soft food she does her best to get comfortable in her wheelchair so she could sleep. Hospice has now advised us she is in the process of dying but is not dying at the current time. The family is wondering how much more suffering must she endure. I will keep you posted.

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A Miracle Witnessed................ .......(More Nursing Home Drama)

01-24-2013 at 09:37 PM 

Once we were allowed to visit my grandmother we learned there were several residents who were in quarantine with the flu. Apparently it was getting around the nursing home. I was happy to resume my normal routine that included visiting my grandmother on a daily basis. I was sad and there was a void during these two weeks and I didn’t want to allow myself to imagine that this is what it will be like once my grandmother is gone but I couldn’t help myself and I didn’t like the feeling. I knew then that I had to make the best of the time we have left together.

We took it one day at a time. On the first day back at the home we went in full force. I, my mother, and my aunt visited her morning noon and night talking to her, feeding her seltzer water through a straw and soft ice cream little by little. Still, her eyes were closed the entire time and we rarely heard a word come out of her mouth.

Day two, she spoke a few more words sporadically but sometimes we couldn’t understand her because of weakness. Her blood pressure was low and she wasn’t eating anything but the ice cream, protein shakes, and seltzer water that we brought her. If we took the straw away from her mouth she would pucker up if she wanted more and when we stopped feeding her ice cream she would open her mouth for more. She would start to stir and show signs of agitation or anxiousness. We continued to speak to her and play her favorite music. We knew she was dancing inside.

That evening I sat by her bedside reading my book, “To Heaven and Back” by Dr. Mary Neal. It’s a true story about a surgeon who had a kayaking accident and died and almost went to heaven and her recollection of her near death experience. I noticed out of the corner of my eye my grandmother lifting her right arm into the air extending her hand palm up as if she were reaching out to someone. She mumbled, “You’re an angel.” Hearing her say these words was no surprise because she often tells the staff and anyone who crosses her path with assistance that they are an angel but witnessing her lifting her arm into the air like this was a bit strange. Considering the book I was reading I immediately assumed she was talking to a spirit that I could not see. It all fell into place when I saw her the next day.

Day three, my mother and I walked into her wing and noticed she wasn’t in her room. We stepped into the nursing station area looking for my grandmother who would often lay in a recliner. She was nowhere to be seen. The only other place she could have been was in the dining room because it was dinner time but considering the condition she was in the last time we saw her the night before she couldn’t possibly be in the dining room having a meal. She was too weak to sit up and could barely keep her eyes open. We stepped into the dining room where a nurse’s aid pointed her out to us. Our mouths dropped, I kid you not, when we saw her sitting in her wheelchair with a glass of juice in her hand! Her eyes were open and she was smiling. My mother and I looked at each other in disbelief. How could this be? We felt like we have witnessed a miracle.

A very simple explanation immediately came to mind. I verbalized my theory and may have seemed a little crazy to some but to others’ they were in agreement. The combination of being able to rejoin society in the nursing home and all of the love that we gave nursing her back to health brought her back to life. A life at least worth living for the short time she may have left. It was a miracle and divine intervention that I believe took place during the last three days. It reminded me of the movie with Robert DeNiro, one of my favorite senior actors, Awakenings where the seniors “came back to life” because of a drug that was given to them.

Since this happened a few days ago my grandmother has become stronger yet her blood pressure is still low and is still believe to be in the last stage of life. Ending on a good note we are very blessed to have my grandmother back and thank God for that. I will continue to visit her every day.

One thing she never lost during the three days she was being nursed back to health was her sense of humor. Any chance she built up enough energy to talk she would occasionally slip out in a mumble and in a hoarse voice, “shuffle off to buffalo”.

Update ........................M ore Nursing Home Drama

01-19-2013 at 01:13 AM 
I had been warned. She was non responsive and would not open her eyes. Her blood pressure was dangerously low and her toes were blue. Isolated from general population for the last two weeks and confined to the quarters of her small space in the room in which she shared with one other person she had been deteriorating. I turned the corner through the door and saw her lying in her bed. She was still and quiet. The first thing I noticed was that she did not respond the way she always had when I first walked into her room. I never had to say a word or make any noise. She always knew when someone walked into her room. She would look up and say “Cher” with an excited tone in her voice. This day was very different. The warning I was given prepared me for what came next but with an unexpected twist.

I sat down on the burgundy recliner that sat next to the bed where my grandmother lay. I began to talk to her expecting her to wake up but there was no response. I recalled our last visit together only 10 days before. We laughed together and spoke about some of her favorite recipes. The significant sign of deterioration was something I could not comprehend. I tried to hold her hand but she would not let go of her clenched hands that held one another. I tried to talk to her again. “Hi Bub, it’s Cherie. How are you feeling?” I continued talking to her asking her to open her eyes and to acknowledge my presence and the next thing that happened made me laugh. As her hands were clenched tightly together every time she moved one hand the other would follow. She lifted both her hands as if she were trying to hand me something and said, “have some.” I realized she was trying to offer me some food in her dreams or wherever she was. Her eyes remained closed during this unanticipated development. I continued to talk to her and then she opened her eyes slightly but closed them only seconds later. I was convinced she knew I was there and that she was just very weak.

A family meeting with my mother, aunt, and the hospice team and floor nurses was taking place in another room. I joined in on the meeting for a few moments and asked the professionals how long she has been in this state and nobody knew. We had to go around the table and ask everyone since the last time they saw her in what state was she in. Ultimately we learned she had been like this for almost a week. It was suspect that the quarantine for the last 10 days may have contributed to her weakness. No familial visitors and no social life for 10 days may have caused this significant deterioration in her health. But, it may have just happened regardless because he health had been deteriorating for quite some time according to the nurses. Again, we may never know but what we do know is that we lost what may have been valuable time with her because according to the health care professionals she only has about 1-2 weeks left on earth.

Today was the first day in 10 days that she was taken out of her room and able to join the general population. I found her in the dining room slumped down in her wheelchair trying to use her arms as a makeshift pillow. A nurse suggested we seat her in a recliner in a more comfortable position during our visit. Again, like the day before eyes were closed, head was down, and she was speechless. But, when I held her hand this time she raised my hand to her mouth and kissed my hand several times. This was a good indication that she knew I was there with her. My mother and youngest son eventually came and my mother brought her favorite drink of seltzer water. Through a straw she sipped the seltzer and spoke for the first time this day. “It’s cold.” Her blood pressure had improved slightly and her toes were not blue anymore. She was comfortable and not in any pain.

I am assuming there will be no more talk of the need to “go home” and “get me out of here”. This could mean that her anxiety level has decreased and that she has accepted her fate. Needless to say I want to spend as much time with her as I possibly can and say the things that I want to say. I hope tomorrow she has more to say.


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Quarantine At The Nursing Home..................... (More Nursing Home Drama)

01-12-2013 at 11:28 AM
My grandmother is in isolation with her roommate and has been in quarantine for the last week. There is a "bug" that has somehow managed to creep it's way into their space. They are allowed no visitors from family and their meals are to be eaten in their room. Needless to say my grandmother is very confused about everything. She is, however, allowed to have Hospice staff visit her because they are in charge of her care. It is comforting to know that, although an unfamiliar face, she is getting a visitor. As always the nursing home doesn't know how this "bug" got into the nursing home because nobody else has it and we are not even sure her roommate has it and is only in isolation because of exposure. We questioned the administrator and her immediate response was that she caught it from a family member and suggested one of the kids caught it at school. We assured them that none of the great-grandchildren has it and they can eliminate her family as the "culprit". We suggested that perhaps one of the staff members who has children brought it to the nursing home. The administrator wouldn't even consider it and interrupted us in mid sentence and said, "no, no, no. Nobody here is carrying this bug." *Sigh* We are pretty sure we will never know how this happened. The concern is that she is properly treated and is back to normal within a reasonable amount of time. In the meantime we are losing precious time with her.

I hope to be able to visit her next week.

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Happier Times.................... (More Nursing Home Drama)

01-07-2013 at 02:19 PM 
My last visit to “the home” was one of the best. Bubie was in a good mood and eating her lunch something she often does not do. We laughed till we cried. I took video of her reciting some of her favorite recipes. We took a stroll down memory lane and spoke about her family.

When speaking of the family my mother asked her about her mother. A person she is “dying” to see again. And, Bubie went from smiling one minute to being very serious the next. “Where is my mother?” she asked. “Is she gone?” she asked. My mother nodded her head, “yes, she’s gone.” Bubie said, “I’m sorry” but before we let her finish her sentence we changed the subject back to some of her favorite recipes.

We took her back to her room where we helped her lay down in her bed and then said our goodbyes.

I am thankful that I was able to get video and thankful that I was able to make some more happy memories with her in them.

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It's a Sad Sad Situation................ ........(More nursing home drama)

01-02-2013 at 08:54 PM 
It’s hard for me to put into words the thoughts I am having as I type this blog posting. I am full of sadness and anxiety. It is partly because of the daily stresses in my life but mostly because of my upcoming loss of my grandmother. I don’t know any other way to put it but my “upcoming loss” because it’s only a matter of time.

My thoughts were conceived from one of my most recent visits to the nursing home. The anxiety comes from not knowing if she will wake up the next day. The sadness comes from knowing the loss is coming. The comfort will come later when it’s all over with and I know she is exactly where she wants to be. How do I know you ask?

A few days ago I visited my grandmother at the home with my children and my mother. We walked into her room and she immediately sought out an avenue to get home. “I’m dying, I’m dying!” she cried out. “I can’t do this anymore!” she began to cry as she lay in her bed. My mother tried to comfort her as best as she could. But, she still wanted to “go home”.

It has been my experience, and you may or may not be able to relate, that when someone I care about and love is about to die I tend to go through some of the emotions of loss before it occurs. I don’t know why this happens but is a natural occurrence and happens without notice. It starts out as anger and can be so angry I do not respond well to nice people. I then wish to be alone in a small space where I then can cry my eyes out. I think when I became aware of this I purposefully stay away from people because I know deep down inside what is causing my behavior. This happened around the time I put my dog to sleep and a night or two before my father died. My body went into auto pilot. All in a matter of a few hours I became very angry, cried my eyes out until it hurt and I couldn’t cry any harder which caused my body to hurt, and I wanted to be alone in a dark room. I was inconsolable. I didn’t write this script. I was made this way.

I feel I am starting to go into this “state” again. I have felt the anger creeping up on me the last week and I have noticed my behavior towards others’ has not been exactly warm and fuzzy. It’s not everyone that steps into my path but those that are at the right place at the wrong time if you know what I mean. I see the warning signs but this time it seems to be taking longer to get to the worse part of crying so hard my body hurts.

According to the Doctors she will most likely fall asleep and never wake up. I know that when she passes she will be out of pain, with her mother, and free from the mental prison she has been in for the last year. I can’t be selfish and regretfully pray for this freedom for her.

Before I left the nursing home I promised that I would get her out of there but first I had to make arrangements for her to leave the nursing home and then make the arrangements for her return to her last home. She said, “The sooner the better,” and seemed to have done the trick to calm her down. She was given a pain pill for the pain she was having in her back and a mild sedative to calm her anxiety.

It’s no fun to lose a loved one. We all have lost someone we love and we all have our own stories of loss and coping. It’s especially nice to know you are not alone.

I invite you to freely share your personal story here on my blog. Just scroll to the bottom of the page and use the COMMENT block to add your story.

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At "The Home" For The Holidays................. .(More Nursing Home Drama)

12-27-2012 at 11:56 AM 
At "The Home" For The Holidays

Christmas was near and all through the halls
At the home sat the old ones staring at walls
With no one around not even a nurse
I thought to myself “how it could be worse?”
God forbid someone falls and knocks themselves out
There must be, must be, someone about.

It was quiet and calm except for the moans
And the people who commonly consistently groan
It was time for their supper with ham, pork, and mush
And my grandmother too with her dietary stuff

We brought them, the nurses, some cookies and cake
Homemade for the thanks of the care that they take
For my Bubie whose frail and weak in her bones
Who can no longer walk or talk on the phone.

At this age her body has taken a toll
Like she says to the staff, “lets’ shake, rattle, and roll.”
It must be those moves she has made all those years
She brought in the New Year with lots of good cheers.

The next thing I know the nurses appeared
One lady asked, “where were you my dears?”
"Handing out medicine. It’s ok, you’re alright.”
“I’ll be right with you shortly please just sit tight.”

The poor people there had to trust the nurse
That their care would be provided and the home wasn’t cursed.
They would get their warm dinners and chew as they can
Then move to their beds for the night was the plan.

With that said as I sit here and come to an end
There is one message that I wish to send
To you my reader with lots of good cheer
I wish you Happy Holidays and a Happy New Year!

Cheryl Ring

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Hospice.................. ...........More Nursing Home Drama

12-20-2012 at 09:36 PM

We have reached the next phase in our care taking of my grandmother. She is now officially on Hospice. She cannot walk even with the help of a walker and she cannot do anything for herself anymore except feed herself. She needs help getting from her bed to her wheelchair or the chair in front of her t.v., and to the bathroom. Unless one is capable of carrying her to the designated object she will remain immobile.

This past weekend was our family holiday party. Of course everyone wanted her there but nobody knew the effort it would take to get her there. It was tough getting her inside but when it came time to getting her back to her “apartment” in the nursing home it was much simpler having learned from the mistakes the first time. But, after all was said and done, with the exception of going to a casino one last time, the decision was made that this would be her last outing. Once she arrived at the party she was happy to see everyone. She ate, received presents, and not long after she was ready to go “home”. My sister in law and me had the honor. We took her back, got her in bed and said our goodbyes.

Before we left she expressed her desire to “go home” and that she didn’t want to stay at the nursing home. The easiest way to divert her is to point out the pictures in her room. She has pictures on her wall that once hung in her house that she shared with her husband and three children. Once she sees the pictures for the slightest moment she is drawn into the memories, whatever they may be, that makes her smile.

I have been to the nursing home almost daily within the last few weeks. My main reason, besides to see Bubie, is to make sure she isn’t sitting in her own urine and that her bed is dry and clean. And, now that she is on Hospice care others’ that have her best interest will visit her several times a week.

My latest visits have been very pleasurable and stress free. Bubie hasn’t shown any agitation that she had in the past at least not with me. My visits are after her naptime and before dinner around 2:30 in the afternoon. It seems to be the perfect time. She’s happy to see me, and always looking for something to eat. It’s music to my ears. The other day she did one of the things she does best. My grandmother is the best backscratcher. She has the perfect nails that are long and pointy. I got a back scratch!

Every time I leave I make sure the t.v. is on the cooking channel with the volume up loud enough for her to hear noise.

Once of the things my grandmother has expressed an interest in doing is to go to the casino. I promised her I would take her one day soon. It better be soon.

The Latest................Mor e Nursing Home Drama

11-28-2012 at 08:06 PM (12333 Views)
I know your probably wondering why I am blogging so soon after my last posting over the past weekend. It’s out of my norm to post more than once a week about the nursing home drama series but I have a good reason. I had such a great visit with my grandmother today that I wanted to share it with you.

Upon entering her room I found her sitting in her chair unattended once again but safe nonetheless. She was awake and appeared to be doing nothing but sitting with her eyes wondering about the room maybe looking for something interesting to look at. When I entered the room she smiled a cute granny smile. You know the one without any teeth that makes one look like a cabbage patch baby. I asked her to join me in the dining room for a slice of Babka that I had picked up at a local bakery. Babka, and I quote Wikopedia, is a Ukranian sweet, leavened bread made with a rich dough. And, I am quoting myself here, “with a hint of coco throughout.” I knew she would enjoy it for two reasons. It’s sweet and it’s a carbohydrate. I helped her in her wheelchair and we rolled on into the dining room where we sat alone at a table for two.

During our visit we laughed and talked about nothing in particular except what most Jewish mothers talk about. Food. Now, it wouldn’t be my grandmother if she didn’t ask me if I was hungry every ten minutes but she surprised me with what she said after discussing my children coming home from school. My visit was going to be fairly brief because I had to leave to get my children off of the school bus and I had a twenty or so minute drive during traffic time. So, I was explaining that and she said, the kids will be hungry when they get home from school?” I laughed, she laughed.

Then she started playing with her shirt and heard a crackling noise under her shirt as if there was wrapping paper under there. She lifted her shirt slightly to reveal a pack of crackers and one cracker that was not wrapped. I asked her if she was a magician pulling crackers out of her shirt. She laughed but laughed harder when I asked her where her boobs went and why she couldn’t hide them in her cleavage. She swiped at me with her hand and had a good belly laugh at that. It was nice to hear and nice to have a laugh with her.

When it was time for me to go I asked her if she wanted to stay in the dining room or go back to her place. I won’t refer to her dwelling as a “room” but as her “apartment” or her “place” to give her a sense of independence and ownership. She wanted to go home and was happy when I left her reclined in her chair with the Food channel on her t.v.

I hope you enjoyed this posting. I am happy to share the bad AND the good. Until next time……………


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Thanksgiving Dinner with Bubie..................More Nursing Home Drama

11-25-2012 at 05:42 PM 
Most were together for the Thanksgiving holiday. My uncle and cousins and their kids came in from out of town for the long weekend. Happy to see everyone we had our usual family get together with appetizers like gourmet cheeses and crackers and Bubies’ favorite chopped liver and rye bread. There was a good selection of wine and drinks to select from. Dinner was the typical Thanksgiving feast of turkey, stuffing, homemade cranberry sauce, and sweet potatoes with slightly burnt marshmallows on top. It was a Thanksgiving to remember because this will, unless a miracle happens, be my grandmothers’ last.

She was in a grand mood at the beginning of the evening and when it began to get dark outside Sundowners Syndrome started to set in. Sundowners can be a time of increased memory loss, confusion, agitation, and even anger in those that suffer from dementia when the sun goes down. My grandmother was tired and constantly looking for a comfortable position in the contemporary chair she was sitting in. There was no comfortable position to find in this type of chair. We wanted to her to eat something before she went back to “the home” but she insisted she just wanted to sleep. It was best to take her back to a familiar environment although nobody wants to get used to the surroundings of a nursing home. Familiarity can help a person who is experiencing a Sundowners episode. So, she left but not before I had a chance to take pictures.

During my visit to the nursing home today I found her sitting in her room in her wheelchair without her feet holders or whatever those things are called. She fell the other day trying to get from one chair to another and perhaps if her feet were held up and in a more comfortable position it may not be as easy for her to move out of her chair. They are not supposed to leave her in her chair while alone. The head nurse is the one who left her like that. I know that because she told me she had just come from her room. My grandmother had been complaining that she didn’t feel good. Her stomach was bothering her and on top of that she was hungry and looking for something to eat. I wheeled her into the dining room as it was almost time for lunch and got her some crackers to eat. I had to leave her there because my son was getting bored and starting to run amuck so I had to remove him from the room. I hated to leave her there and after such a short amount of time but I knew her immediate needs were being met. Her lunch was soon to follow.

I have completely lost trust in the nursing home staff. I have learned that unless you are standing over them the staff will not go out of their way to help your loved ones. They have enough staff to run a wing according to state laws but no more than are required. Wouldn’t it be nice if such a nursing home existed where the people that worked there loved working with geriatric patients, loved what they do, and could put themselves in the shoes of the elderly that they take care of? And, the people who ran the home made sure they had enough staff to care for the amount of people they allow live under their roof? A lot of these people who live in my grandmothers’ nursing home are paying their own way including my grandmother. Shouldn’t they get what they pay for?

I know a lot of people may think that if you want your loved one taken care of properly to let them live with a loved one who can supervise their care BUT it doesn’t work that way unless you have a million dollars or more to hire care around the clock, have the appropriate medical equipment nearby, and put surveillance cameras in every corner of the home. And, even that won’t cut it. You don’t want your loved one to be alone when you’re at work or out living your life. At least while in a nursing home or care facility they are around other people and the nursing home is fully equipped to handle emergency situations right there on the premises.

Will this ever change? What will it take to make a change in the way our loved ones are cared for in nursing homes or care facilities? I’m listening……………..

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The Hard Truth............More Nursing Home Drama

11-18-2012 at 04:57 PM 
We just learned of a diagnosis and prognosis of my grandmothers' condition. She has myelofibrosis scarring, a rare disease of the bone marrow. I can get into more detail about it but at this juncture it doesn't really matter. This could be what is causing many of her systems including behavior and pain. The doctors say she has up to 3 months to live. I don't think she will last that long. She is weak, complaining of stomach pains, wants to sleep all the time, and constantly wanting to "go home" to be with her mother and father. When I heard this I felt a small panic of needing to do and say things before she is gone. I know it will be over before I know it and I want to have as much time with her as I possibly can.

On a brighter note when I went to visit her on Friday, unlike the day before, she was cherry, happy to see me and my son, and hungry. Who was she and what did she do with my grandmother! She was looking for whatever food she could get her hands on. She was playing with my son and trying to tickle him and was in a great mood. She still looked for her mother and father but I knew she was alright when she complained about a lady sitting nearby us who was talking to herself. She looked at the lady and then looked at me giving me the "she's crazy look." It was actually pretty funny because my grandmother doesn't recognize her own senility but comments on others'.

Saturday when I went to visit her she had reverted back to being sad, feeling lost, and wanting to go home. She had a few choice words for me like "if you don't take me home I will die" and "I thought you were my friend. Why won't you take me home?" Then she would look at me the next minute and say, "I love you." I tried to hold back the tears and was speechless. I know she doesn't realize what she is saying or how she is making me feel and it's the "disease" causing her to act this way but it still hurts nonetheless. What hurts more is seeing her like this and not being able to do anything about it.

Sunday, today, my entire family came for a visit and at first she was in a good mood but shortly changed into the sad and lost grandmother looking for her way home.

The truth that there is nothing and I mean nothing, I can't stress it anymore than this, I or anybody else can say or do to calm her down. I took her for a walk and all she wanted to do was find my car so I can "take her home." When she expressed her desire to see her parents I told her they were with us she knew I was full of it and when I told her that her mother had died years ago she got mad at me and yelled at me for telling her such a horrible thing. I have tried everything and if someone who reads this has a solution please call the Inquirer. What helps calm her down is to give her an anti anxiety pill. And, this is what we had to do on this day. Shortly after it kicked in my Aunt and Uncle showed up with one of her favorite snacks, blinze, a thin pancake rolled with cheese or fruit on the inside.

I think my 6 year old son put it best, "I think Bubie wants to go home to be with Zeda Nelson." Zeda is his great grandfather who is in heaven.

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More Nursing Drama...................D rama is putting it mildly

11-17-2012 at 04:05 PM
It’s not as bad as is looks. My grandmothers’ left hand was purple from her wrist to her fingertips and blown up five times its normal size. What are we supposed to think? What would you think? They took an x-ray of her hand and the search for a fracture was negative. They iced it and gave her some mild pain medication. It was evening time when they called and she was agitated wanting to go home. “Get me out of here!” were her exact words. Her two daughters were by her side as she begged for a ride home. Should we stay or should we go? What do we do? Are we making it worse for her being there or should we stay to help calm her down by seeing familiar faces reminding her of home? These are the questions that went through their minds but my Aunt and mother had to eventually leave.

The next day I was up to see her. She was sleeping in her chair. She is not supposed to be sleeping in her chair because she had fallen out of her chair many times before. We wanted to put her in her bed but when we pulled the covers back we saw and smelled the saturated sheets covered in urine. We requested this matter be taken care of and that she be changed out of her clothes and into clean clothes. It was a male aid who attended to both the bed AND my grandmother. I’m sorry but a male aid changes the female residents? It made me sick knowing what I know about the rapes that take place in nursing homes with the residents, but not necessarily this nursing home.

The swelling of her hand and wrist had gone down a little but the bruise on her hand had spread up her arm. It appeared she was wearing a purple glove covering her entire hand and wrist. She would hide her arm in her pocket or behind her back, as it was painful to the touch. We demanded they x-ray her wrist and put more ice on it. When I asked for ice they said they had to put an order in with the Dr. What!? I asked what would be quicker, going out and getting it myself or waiting for them to get the authorization. They said they would take care of it right away. I am not going to wait for them to call the Dr. and wait for a call to be returned for something my grandmother needs right away.

There was speculation about what caused her hand to swell up and turn purple so we requested a Dr. see her to evaluate her condition. A seasoned Dr. came to see her and suggested that because of her frailty and the blood thinners she takes she may have had a hematoma that ruptured and spread like wild fires. But, that did not explain the swelling and severe pain. The wrist x-ray was also negative for fractures. Whatever the case may be the goal was to make her feel as comfortable as possible and that is what we did.

The next two days I visited her to see how she was progressing and today was the worse day of all. It started before I even arrived. She was angry and said she wanted to go home. She wanted to go home to where her mother was. Her mother has been dead for over 50 years and when I reminded her of that she was upset as if I was telling her to hurt her. I knew she would forget so I decided to take a different approach the next time it happened. I simply told her that her mother was there and I would go find her but only after she agreed to be cleaned up and put in bed which she adamantly refused to do. She kept saying she wasn’t’ feeling good and often would doze off as she sat in her wheelchair. I told her I would take her out of there after she allowed to be cleaned up. She agreed and was willing to cooperate to get her wish. I wheeled her outside to the parking lot where she asked where my car was. I kept walking in the hopes that she would fall asleep. But, during her nap she would occasionally put her head up and say she wanted to go home. She felt lost and wondered why nobody would help her. I told her I would look for her parents after she got in bed to take a nap but again she refused. I asked for something to help with anxiety and hoped it would kick in quick. While the pill was working it’s way through her system I took her for a long walk around the nursing home. She fell asleep like a baby does when being walked in a pram but would wake up when the wheelchair came to a stop. After about 20 minutes I took her back to her room where she finally agreed to be put in bed if I went to look for her parents. I agreed but when I was getting ready to leave the room she didn’t want me to. She wanted me to stay. She complained about not being able to breath anymore. I was scared. I told the nurses station and they said they would check her vitals and keep an eye on her.

After a few hours of not knowing how to help my grandmother I had to leave. I kept my promise and spoke to her parents, the people I am named after, in prayer and asked them to be there for her. If they could make themselves known to her to please do so and to be there for her when it is her time to go. I wanted to put her out of her misery even if that meant losing her. The important issue at hand is living a quality life and not having to live a life in pain and confusion. We can only imagine what she is going through.

One thing we know for sure is that her dignity will be maintained now that we forbid them to allow a male aid to change her or help her in the bathroom. They know we are on top of every situation that is going on with her and will keep our eyes on everything. I have been up there everyday so far this week and will continue to check in on her to make sure she is getting what she needs. As busy as I am with two young kids, a full time job, and not enough hours in the day I have chosen to make my grandmother one of my priorities to see that she gets what she needs and is treated with respect. It goes without saying that she depends on us to be there for her in this capacity even though she is unable to communicate it to us. I don’t want to live with regret and need to know that I did everything I could for her while she is still alive. Moving forward we have Thanksgiving to look forward to. With my grandmother we will have a feast with laughs and joy. She will be surrounded by almost her entire family. The kids will make her feel young and the familiar faces will make her feel at home. I am thankful for the meaningful relationship I have had with my grandmother. I am thankful for a lot of things.

The Glass Is Half Full...................Mo re Nursing Home Drama

09-25-2012 at 12:24 PM 
I could write a depressing post today based on my last visit with my grandmother over the weekend but I won’t. I always look at my life as though my glass is half full. I will do the same through my grandmothers’ eyes.

She was happy to see me as she sat at the dining room table having just finished “looking” at her lunch. She had not touched it and claimed not to be hungry in the least. But, I filled her hands with sugar free candy that she then put in her pocket. It was hers and she was going to hide it from everybody. It put a smile on her face. If she doesn’t hide it someone is sure to come along and take it. Just like the Cabbage Patch lady did during my visit when she went into someone's room and took one of their stuffed animals off of their bed and stuffed it in her walker basket.

My grandmother asked me when she was going home and my response was a convincing “I don’t know.” As far as I am concerned home is heaven where her mother is whom she is constantly looking for. It’s where her husband is and the rest of her loving family. I will post more on this topic another time.

After lunch I took her into the tv room where I knew she would be distracted by the television when I would make my exit. She loved watching television when she had her own apartment only a few months ago, something that does not exist in her world at the home. Soon after others’ joined us. I knew it was only a matter of time before heads fell, eyes closed, and the elders would check out for the afternoon. This was after a day that began with a hearty breakfast, an exercise class, and a full lunch. After their nap they will get ready for dinner. Again, I don't want to get into it right now but this is the life of a person who has lost their mind, my grandmother excluded. We still don't understand why she is in this wing. She is the only sane individual person there besides the staff. They will not move her because they feel she is a flight risk yet all of the doors going to the outside has an alarm system on it and will not open without a code. Although she knows she is surrounded by people who can act like lunatics at times she probably forgets minute by minute where she is. But I digress.

We recently celebrated my grandmothers’ 93rd birthday at my brothers’ house. We gave her balloons and hung a stream of multicolored necklaces around her neck. We sung happy birthday to her and had birthday cake. She kept asking everyone, “Whose birthday is it?”

Happy birthday Bubie!

It's Party Time..................... More nursing home drama

09-10-2012 at 03:32 PM 
Her life, as far as I am concerned, ended when they took her tv and personal belongings away. It seems that she was put in the nursing home to die. It’s because of the lack of freedom and loss of her “life” including personal furniture, television, and environment that I base this on and again is my opinion.

My grandmother loved to watch the game show network. That is what helped her get through her what may have seemed to be short but realistically long days. The furniture that was in her house on Mesa was in her studio apartment at the senior living community center where she resided for several years after my grandfather died in 2000. She also had the pleasure of knowing and looking at one of her favorite rooms in her apartment that she no longer has. Her kitchen was her pride and joy. It’s where she spent many hours especially during the holidays cooking and baking for the day and days to come. She always had a freezer stocked with goodies for whoever visited her cozy home.

Her room at the nursing home has two beds, two chairs, two nightstands and a bathroom. She has a few pictures hanging up on the walls near her bed. Although encouraged to go to the tv room to socialize and watch movies it’s not her thing. They don’t have the games show network on and play old movies over and over again. Who in the hell wants to be reminded of how old you are when living in a nursing home? Ok, it takes them back to the “good ole days”, I get it, but not being able to keep your normal routine at this age does more harm than good as far as I am concerned.

She was somewhat happy while she sat in her chair in her apartment watching game shows and feeling a simple sense of independence having the ability to store juice and snacks in her kitchen. I kept a bag of toys there so when I brought my two young children they could play at their great Bubie’s home. They had snacks with her and had the privacy that no longer exists for her and her family.

Wouldn’t it be nice if the nursing home had a cozy little living room with all the comforts of home set-aside just for family visits? It could give the elders a sense of home, dignity, and privacy. It could give them the occasion to feel like they are still taking care of their family and loved ones.

This weekend the "home" had a big backyard party with pony rides, face painting, and a balloon artist dressed like a clown. There were train rides, a petting zoo and games for the kids to play. There was a buffet of picnic food and gourmet desserts. My grandmother had a little bit of life in her when she had the choice to sit outside in the sun and enjoy the festivities or sit inside the wing of the nursing home. She came alive this day and chose to stay outside with her family and commented on how she was enjoying the sun and crisp air. There was a band playing and people dancing. My grandmother lived this day and soaked it all in. She even had a balloon made for her in the shape of a flower. When she returned home from the party she had a smile on her face.

So, every day that can be enjoyed and lived is another day enjoyed and lived. I wish this could happen every day. I wish I had the ability to have my grandmother live with me with nursing around the clock. I wish, I wish, I wish. It is what it is, this is life, and I have no power. So, the best I can offer is to be there for her when I can. Do for her what I can, and love her unconditionally. That is all any of us can do.

I will always remember this day at the nursing home backyard party.

A Night At The Home.........More nursing home drama

08-30-2012 at 08:20 PM 
It was an early evening visit at the home and a cute old black lady who often wore two brads in her hair was following me. She reminded me of Dorothy from the Wizard of Oz minus the youthful features in her face. “Are you going home?”, she asks me over and over again. My answer didn’t matter because she would forget minutes after the last time she asked me. “I am not leaving yet but will eventually go home”, was my response. “Can I go with you?”
“I don’t think they will let you leave with me.”
The conversation continued like a revolving door. She stuck to me like glue. Every time I stood up from my chair she stood up too. Every time I would walk away from my chair she would walk right behind me. My grandmother was getting agitated and started to yell at the old black lady to leave me alone. My concern with was my grandmother who had complained about a pain in her arm. It was in the same place where she had bruised herself a week before and this time I felt a big bump but on the other side of her arm opposite the bruise. I alerted the nurse who gave her some Tylenol and another nurse put ice on her arm. My grandmother was getting all of the attention from the nurses who also assured me they would alert her doctor right away.

In the meantime, the old black lady walked over to the exit door as if she was waiting for someone. The old man with the beard was sitting behind the desk and refused to leave the area when asked to by the nurse. Another old lady who was fairly new to the home was being escorted around by an aid. The old lady had a habit of whimpering as if she was constantly in distress, lost, and scared of something. While sitting at the dining table next to my grandmother the cabbage patch lady was having a fit with an aid that was trying to feed another lady sitting next to her. The aid was in between the two ladies. Cabbage patch lady would push her food away from her and practically into the lap of the aid. She was making faces at her and acting like a…….crazy person.

My grandmother was being taken care of that evening so I was happy about that but leaving her in the company of people who turn into crazy when the sun goes down. I don’t know how the nurses deal with this type of environment every night and keep their sanity. I am sure they get a laugh every now and then but at the end of the day these crazy people were once very normal and sane and that is the way they should be remembered. My grandmother is still, in my opinion, one of the sanest people that live in the wing. In her old age she isn’t getting crazy but just tired and it shows. I love you Bubie! I will see you this weekend.

Nursing Home Under Investigation......(More nursing home drama)

08-21-2012 at 10:22 AM 
We received a telephone call from a nurse late one night that scared my mother half to death. Anytime the nursing home calls after hours it’s a fright. The nurse was calling to report that my grandmother had a bruise on her left upper arm and asked if we knew anything about it. We did not but the nursing home should because she is on “supportive care” and is not to be out of their sight at anytime according to the staff nurse on her wing.

We paid her a visit that afternoon to see the bruise and to make sure she was ok. The bruise was on her outer left upper arm and measured approximately 5 inches long by an inch wide. We immediately ruled out physical abuse because the bruise was not consistent with that. We guessed she either fell onto something or something fell onto her. It doesn’t take much for an elder to bruise but this was a large bruise and may have looked worse than it really was. The big issue here is that if the staff doesn’t know how it happened than what really is “supportive care”? The last time I had visited her I was told I couldn’t take her to her room because she couldn’t be alone, yet, if she wasn’t alone and out of site of the nurses on duty why don’t they know how she was injured? We my never know.

The next time I visited her was a few days later when my mother and I visited her. She was sitting in her room ALONE with the exception of an old lady who wore a helmet on her head and walked like the Hunchback of Notre Dame who occasional walked into my grandmothers room and, I’m only guessing here, into the walls.

She looked at my mother who was sitting on her bed across from where she sat in her chair. She didn’t know who my mother was. My mother asked her over and over again, “Who am I?” My grandmother answered, “I don’t know who you are. When am I going home?” Then, I walked in. “Hi Cher!”, she said as her eyes lit up. “When am I going home?” I asked her who was this woman sitting next to me and that she was my mother. My grandmother asked in the form of a question, “Bobbie?”, but was not convinced she was really Bobbie. I told her it was her daughter and my mother. She knew who her daughter was but her brain wasn’t recognizing or remembering her daughters face. As far as my grandmother was concerned she could have been one of the staff. She had my mother in tears.

I assured my mother that my grandmothers’ brain had a hiccup and would remember her at any time. And, she did. My mother kept asking her who she was and when she finally recognized her she called out her name as emphatically as she did mine, “Bob!”

It didn’t come as a surprise that she didn’t recognize my mother because this has happened before and it never lasts. But, seeing what we have seen with others’ that live in the home “we haven’t seen nothing’ yet”.

Another Dramatic Day At The Home

08-13-2012 at 11:37 AM 
It started almost the moment I walked in and sat down next to my grandmother on one of the three chairs lined up against the wall. My grandmother was in another chair and the third chair was vacant. Until, an old man with a white beard and a wedding ring on his ring finger sat down. I though there was going to be a fight against the cabbage patch lady and this old man who acted and seemed as sane as I was.

The cabbage patch lady began yelling, “that’s my chair!” “Get out of my chair!” It is not necessarily grammatically correct to put several exclamation points at the end of a sentence otherwise I would have filled up this page. She was livid, mad, and put her walker down. Seriously, she picked up her walker and slammed it down right on top of the old mans feet and pierced her lips, well, for as much as a cabbage patch lady can. He said, “go find another chair to sit in.” Before there was another eruption I offered her my chair and she graciously accepted and spat twice on the old man on her way over to my chair. He grumbled a few words under his breath about how tuff she thought she was, etc. The old man eventually got up from his chair and walked over to the window nearby as if he was looking for someone.

My grandmother said she was bored and wanted to go somewhere other than where she was that very moment and she mentioned about going to her room. But, on our way a nurse stopped us and said she wasn’t allowed to be alone in her room. I thought for a minute and realized, with confirmation from the nurse, that this is what “supportive care” is. It was obvious that my grandmother had to live around the schedule of the staff members. If she was tired she was not allowed to lay down in bed where she would be more comfortable than trying to stretch out in a chair to take a nap. I felt bad for her because she was obviously sleepy and wanted a nap in her own bed. That was not allowed. I am looking into the rules about “supportive care” to find out why she is inconvenienced and not the nursing home where if short staffed should hire some aids for this purpose. I am sure my grandmother is not the only person on the wing that requires this type of service. It’s just sad that the old people lose their ability to make the choice as to where to take a nap.

The nurse directed us into the dining area where we sat at her table where they could still monitor my grandmother. I ran out of the wing to get a cup of coffee and when I returned the cabbage patch lady was taking her seat at the table next to my grandmother. My grandmother said, “I don’t want to stay here. That lady is mean.” She got up from her chair faster than I have seen her move in a long time and proceeded to push her chair into the table. We went back into the tv room where she was when I arrived. She drank her coffee and ate some peanut butter crackers while we looked at family photos that she kept in her purse that lived in the basket of her walker. I noticed the old man with the beard holding a bag of what seemed to be clothes and such and standing by the window. He looked as if he was ready to leave at any moment. I asked the nurse if he was a visitor or a patient and sure enough he was a patient. It was hard to tell because he seemed as sane as I was. The truth about him was that he was fairly new there and had not yet accepted his new home. Next he was behind the reception desk sitting in a chair dialing a phone number. He was looking for a ride out of there. He got up and walked over to the door and set the alarm off by trying to open the door without punching in the code. It was sad. That could be me one day. God forbid!

Before I left I learned the cabbage patch lady was celebrating her 104th birthday. Happy Birthday cabbage patch lady.

Three Weeks Later...............More Nursing Home Drama

08-08-2012 at 12:24 PM 
I feel like I am in a hurry to write this weeks’ blog posting. I feel like too much time has passed since my last entry. I think it’s because I feel guilty.

It had been three weeks since I last saw my grandmother and trust me when I say the circumstances were unavoidable. The reasons do not matter as much as the desire to have seen her for those missing weeks do. For as long as she had been in the nursing home I had seen her at the least once a week if not more. The reason is not because I feel obligated because she is old and in a nursing home. The reason is because she is my friend and I have a relationship with her and I enjoy being in her company. I can joke around with her and tell her almost anything without being judged. It wasn’t always like that but it became that way when I was in my 30’s. I spent a lot of time with her and my grandfather when he was still alive and after my grandfather died I started to spend more time with my grandmother. I was single and had the freedom a single person had. That is when our relationship took a turn and developed deeper and into a friendship.

During my three weeks away I was worried about her health but knew she was in the best place she could be for a person in her situation. I was concerned that she wasn’t getting enough family time because I suspect not all of her children and grandchildren visit her on a regular basis. And, don’t get me wrong although I am concerned about her well-being and such it’s not all about my grandmother. It’s more about the person she has the relationship with and fulfilling their needs and doing what’s right for them. At this point my grandmother isn’t going to remember anything anyway and it’s hard to dismiss her feelings but it’s a fact that her feelings are short-term and she will forget whom she is upset with if at all upset to begin with. And, I know my grandmother and how she was raised and in her mind it is important to show a certain amount of respect to your elders. It’s something I felt I lacked from her in my youth. Why, I do not know and at this point in my life I do not care. It is what it is now and I am doing what I need to do for myself in order to fulfill my needs of not having regret at the end of the day.

I finally saw her this past Sunday afternoon and in fact was not the only one. I was happy to see my brother and nephews.

I have since learned that my grandmothers’ declining health has sped up a little and will now require “support status” from the nursing home. The way it was explained to me is that “support status” is one level above hospice. I do not even know how to prepare for the loss. It is without a doubt expected and considering her age and health status probably in her best interest but it’s the next part that will be difficult to accept. The part of losing someone who has been a regular part of your life for over 45 years, a good friend, and someone you love.

I appreciate my readers and all the support you give by reading my blog. Stay tuned!

The Card Game...........More Nursing Home Drama

07-02-2012 at 08:04 PM 
It seemed like the old routine “Who’s on first, what’s on second” by Abbott and Costello. I wanted to pull my hair out!

It all began when I went to “the home” on Sunday afternoon. I went by myself as I had promised the last time I was there with my kids. I knew if I had brought my kids I would not have had time to visit with my grandmother. My expectations were to have a nice quiet visit with her. Only seconds after walking in through the double doors leading into the wing I was greeted with, “Honey, can you take me home?” said in a very determined and demanding voice. I followed the voice and recognized the desperate plea coming from my own grandmother who was sitting in front of the receptionist desk right by the exit doors to the wing. After I approached her she recognized that I was her visitor and her granddaughter. “Oh Cher, hi honey. Will you take me home?” It was then that I realized she had asked a stranger to take her home. It’s a fact that she did not know whom I was when I first walked in and probably couldn’t see me until I got in her face.

She was suddenly ‘one of them’ in my mind. The other residents say things like that to strangers, not my grandmother. In my humble opinion she was always the sane person in the wing. She was always astounded by the behavior of the others’ in her wing and seemed to respond as one who didn’t belong in there.

I followed through with my plan to take her out of the wing and into the lobby of the home where she could feel like she was escaping from the prison walls of the Alzheimer’s wing. I asked her if she wanted a cup of coffee knowing full well that she loves her coffee but was disappointed when she said, “no”.

“You don’t want a cup of hot coffee?”
“No. Who’s gonna make it?”
“I will.”
“Ok then. I will have a cup of coffee.”

I transferred her into her wheel chair and handed her a box that contained a deck of cards. We proceeded to walk the long halls of the home to get to the main lobby. Our first stop was the ice cream parlor where I found an ice cream bar for her to eat. The next step was a table near a bar that had juices, tea, and hot coffee. When we arrived at the table I asked her for the deck of cards. “I don’t have them,” she said. I checked around her chair but they weren’t there.

“Well, I handed them to you.”
“I didn’t bring them.”
“Ok, I am going to go back to see if you dropped them along the way. I’ll be right back.”

I began my long journey through the long hallways and back to her wing. I took the extra several steps to the front of her wing but there were no cards. When I got back to my grandmother I saw her examining the box that contained the deck of cards. She had them the entire time. Never mind.

The next thing I did was got her cup of coffee and myself a cup of tea, broke out the cards and asked her what she wanted to play. Poker. If there was one thing I was sure of that was that my grandmother knew how to play cards. Growing up she taught her grandchildren how to play blackjack and she played the game of poker with her friends every week. I think her last poker game was shortly before she moved out of her condominium about 10 years ago. I remember growing up my grandparents frequented Las Vegas and were treated as VIP’s. I remember them coming home with presents for my brothers and me. It was an exiting time to go to the airport to pick them up. I dealt the cards. Five-card poker threes is wild. The first hand she threw a card down and I gave her a new one. The thought going through my head was, “yeah, here we go. Something my grandmother knows how to do and I am sure she will enjoy.” It was my turn to discard and replace. I was ready to put my cards down as the dealer to expose my hand and my grandmother put a card face down in front of her and said, “I need a card.”

And here we go………..

“You already discarded and now you have to lay your hand down.”
“No I didn’t. I need a new card. Come on.”
“Ok, but how do I know it’s not the card I just gave you?” I gave her a new card.
I lay my hand on the table, a pair of sevens.
She lay her cards down on the table one…at…a…time. “I have a full house.” A ten, jack, queen, king… And, that was it!
“You can’t lay 4 cards down. This is five-card poker. You need five cards to get a full house.”

I dealt the next hand. I reminded her what was wild but this time she wanted it to be a 5. I waited for her to go through her cards. She appeared for a split second to be totally normal and totally in her element with cards in her hand until she started to discard again. She laid one card faced down in front of her. I gave her a card then discarded my cards and dealt myself some new cards. The she discarded another card and expected me to deal her a card. I reminded her she had to do it all at the same time. I lay my cards down. I had a full house this time. My grandmother laid her cards down one… at… a… time. She had three aces, three of a kind. I asked her what beats what. She said as though she was sitting at a table with Veteran poker players, “a full house beats three of a kind.” That she remembers! The next few hands I walked her through it and then decided to play blackjack. I knew everything I knew about blackjack from when she taught me as a child. I was sure she would remember how to play. I dealt two cards out to each of us and she didn’t know what to do with them. I had to remind her how to play. The roles were reversed until we played a few hands and it seemed to all come back to her. Teaching my grandmother how to play poker and blackjack is like trying to teach a retired fisherman how to bait his hook. It’s something you never expect for them to forget because they had so much practice doing it.

Once we got the game going she didn’t want to stop and wanted to keep playing but our visit was cut short because it was getting close to dinnertime and people were starting to come into the dining room and would eventually want to sit in our borrowed seats. We headed back to her wing, with a coffee to go, and into her dining room.

I said goodbye and she did everything she could to keep me from leaving. I told her I would be back.

In and Out. ( More Nursing Home Drama.......)

06-27-2012 at 01:19 PM 
My visit this last weekend with my grandmother was very short mainly because my two little boys were running circles, literally, around the other old folk that live there. One little old lady that wears a cute little hat and has the face of a cabbage patch baby opened her mouth and yelled at me it seemed at the top of her little old lungs. “Are you going to let these kids run around and break everything!?” I said in a very calm voice that there was nothing there to break and they weren’t doing anything but playing with a balloon. I was really thinking to myself that if they accidentally ran into one of the old folk that they could break them or something on them so we moved our “party” into my grandmothers’ room.

In my grandmothers’ room my mother and I and my grandmother sat down on whatever we could find to sit on and the boys ran around touching everything they can get their hands on. Kids will be kids and boys will be boys. We cut our visit short and said goodbye.

It wasn’t the visit I had expected. I had hoped to get her a cup of coffee and sit with her for a while but my constant need to parent my young children does not allow me the freedom to do so. Visits such as this are limited to weekends when I can visit by myself and in the afternoon when she craves the perfect cup of coffee, which she will not get at “the home” but coffee nonetheless. So, my plan to visit her this Sunday is on my schedule.

I miss not being able to call my grandmother whenever I want. She doesn’t have a phone in her room anymore. I remember years before she started to take a turn for the worst we spoke on the phone at least once a day if not more. Just to say “hello” and to keep in touch. Now, if she wants to make a call she has to go to the front desk and have them dial out for her. She took advantage of this when she first moved in but the calls have ceased. So, I depend on the times I can visit her. I want to remember her and always remember the bond that I have with her. I feel so lucky that at the age of 47 I still have my grandmother who will be 93 (I think) in September. That comes down to the fact that she was young when she had my mother and my mother was young when she had me. How lucky is one girl to have had two best friends growing up?

Bubie Update............More Nursing Home Drama

06-19-2012 at 01:08 PM 
I entered through the double doors into the Alzheimers wing and was told I would find my grandmother sitting in the t.v. room. The first thing that entered my mind was that she was being social instead of sitting in her room by herself staring at the walls. But, this was not the case. She was sitting in a chair but away from everyone else and when she saw me she acted as if she had been at sea and saw land for the first time in years, as if I was her escape, rescue, and savior. “Oh Cherie, I am so glad you are here, I want to go home”, she cried out in a tone that seemed happy and relieved that there was a light at the end of a tunnel. My heard sunk. I was limited as to what I was able to do for her. I sat down next to her and assured her that I am always there for her and that everything was going to be ok. Again, I reminded myself that short term promises and reassurances are what she needed considering her state of mind. The urgency in her voice hurt me the same way I feel when my kids are hurting but there was little I could do for her but knew whatever I did had to take place somewhere other than that wing she lived in.

I retrieved her wheel chair from her room and proceeded to take her out of the wing and into the main lobby of the facility. The lobby is a large open area with the small shops including a beauty shop, ice cream parlor, and offices. I told her we were going to go get a cup of coffee hoping she would register the idea of leaving her wing or “the home” so it would cheer her up and give her a sense of freedom. Off of the lobby there are two large dining areas where people can help themselves to coffee, juice, tea, and crackers. There I fixed my grandmother a cup of coffee with cream and gave her some crackers to snack on while I sprinted over to the ice cream parlor to grab an ice cream bar for her. I could tell she was hungry the way she ate the ice cream bar and watching her drink her coffee reminded me how sometimes a hot cup of coffee can be better than sex. They don’t serve coffee on her wing so this was a real treat for her. I would make sure she had her morning coffee everyday if I could. Seeing her change from an agitated person feeling trapped to a relaxed and almost child like state was so gratifying for me. I actually felt that I had some power against the disease that mostly dictates her mood. After a cup of coffee, an ice cream bar, a cup of juice and two packs of saltine crackers it was time to head back to the wing. But, I wasn’t going to let her leave empty handed. I grabbed a to-go cup and fixed her another cup of coffee and took a few packs of crackers to take back to the wing with her.

Once we got back to the wing I put her in the same chair I found her in, handed her the cup of coffee and said goodbye. Dinner was only minutes away and knew she would be more relaxed than when I first arrived. However, I also knew it would be forgotten seconds after I walked away from her. I had also learned that I was her third visitor of the day. It doesn’t matter how long our visits are or how many visits she receives in any given day because whatever happens to the brain when the “Old Timers” disease kicks in takes over the brain and wipes out short term memories. But, it doesn’t matter because the visits and short coffee breaks that she receives may be making a difference we are unaware of.